National MLH Leader Dixie Varns Named Fraternalist of the Year by National Mutual Benefit, a Fraternal Life Insurance Society

11 07 2011

Longtime Mended Little Hearts leader Dixie Varns of Spearfish, South Dakota was recognized by the five-state organization (North Dakota, South Dakota, Minneapolis, Wisconsin, Illinois) for her tremendous contributions that Mended Little Hearts leaders have known for some time.

Varns youngest son, Tucker, was born with a congenital heart defect and was supported by National Mutual Benefit’s local branch.  She went on to organize a local MLH group and has helped other communities to form groups as well.  She is also responsible to developing a prototype of the care gift bags that MLH provides families in many communities today.  According to MLH leaders, she is “exemplary in every way and they are right to recognize what we’ve known all along.”





Mended Hearts of Rochester’s Sharon Feldman featured on WHAM-TV Go Red for Women Special

25 03 2011

Sharon Feldman, president of Mended Hearts of Rochester Chapter 50, tells her story about needing a heart valve replacement, how she found Mended Hearts and how the organization helped her overcome her fears regarding her heart event.

Her story was featured on WHAM-TV Channel 13′s Go Red for Women feature where several Mended Hearts and Mended Little Hearts were featured some of those included Chapter 50′s John Campana, Suzanne McNamara and  Patt Guerrette.

Click here to see the first three parts of the Go Red for Women feature with these members from Mended Hearts Chapter 50.





See The Many Faces of Mended Hearts in the Spring issue of Heartbeat Magazine

14 03 2011

This quarter, Heartbeat Magazine, focuses on the increasing diversity of Mended Hearts members in terms of patient experiences, age, gender, circumstances, backgrounds and perspectives–thus showing how these differences increasingly make our organization better.

In the Spring Issue, you will find examples of this diversity in “It Takes One to Know One” which showcases the variety of diseases and circumstances Mended Hearts’ membership reflects. “Chapters on the Move” shows how the Cath Patient Outreach Program is allowing our members reach out so as to increasingly interact with patients undergoing less invasive procedures.

This issue’s “Heart Hero” tells the amazing story of Alexandria Calhoun who, like so many Mended Hearts members, has found hope by participating in her chapters visiting program. In “Healing Hearts/Mending Lives” we learn about Lucille Grant’s own courageous story and how she continues to help others through her chapter and the Noah’s Ark Cardiac Rehabilitation Fund which she founded in 2003.

In this issue the Mended Little Hearts (MLH) program works to help us understand the challenge so many children with heart defects today face as they are living into adulthood.

Get inspired by fellow members, learn more about how Mended Hearts works to reach all heart patients, grab few heart-healthy tips and more in the latest issue of Heartbeat. Mended Heart members receive a free copy of Heartbeat Magazine.

Click here to subscribe to Heartbeat Magazine or to inquire about becoming a member click here.





Barbara Walters: A Matter of Life and Death available on ABC Online

23 02 2011

On February 4, Barbara Walters hosted “A Matter of Life and Death” which featured interviews President Bill Clinton, David Letterman, Regis Philbin, Robin Williams and Charlie Rose, all of whom experienced open heart surgery.

Earlier this month Barbara Walters hosted “A Matter of Life and Death.” The show featured interviews with several celebrities including President Bill Clinton, David Letterman, Regis Philbin, Robin Williams and Charlie Rose, all of whom went from being in the spotlight, to being in the operating room to undergo open heart surgery.

Mended Hearts members will remember Dr. Kathy Magliato, a cardiothoracic surgeon who appears in Walters piece. Dr.  Magliato spoke on women and heart disease at the 2009 convention in Orlando.  Her book, “Heart Matters” contains multiple references to Mended Hearts and what a valuable resource it is for patients.

You can click here see the segment online.





Dayton National Honor Society members raise $4k to help heart patients

22 02 2011

Last week Butler High School students in the Dayton, Ohio area brought attention to heart transplants and the Noah’s Ark Rehabilitation Fund, which was founded by Mended Hearts member Dr. Lucille Grant.

Dr. Grant, who is a heart transplant recipient, was joined by area cardiologist and fund co-chairman Dr. Amit Goyal to accepted the check and honor the Butler student body.

The students raised $4,844 for “Have a Heart and Do Your Part” Adopt-A-Patient Program. The money will be used to provide life-saving cardiac rehabilitation services for six cardiac patients who do not have insurance coverage for the services.

“I am overwhelmed by the hard work and dedication of Butler High School,” Dr. Grant told the Dayton Daily News. “I am so grateful to the students who joined us in the fight against heart disease. They have provided the same gift to others that was given to me. They have made a positive difference in the lives of others.”

Click here to read more in the Dayton Daily News online.

Also, don’t miss the spring edition of Hearbeat Magazine coming soon in March where Lucille Grant is featured in our Healing Heart, Mending Lives segment. Not a Heartbeat subscriber but want to be? Click here to subscribe today.





Tulsa MLH mother pays it forward

1 02 2011

By Jennifer Browning

Kelly Coe, fundraising coordinator for the Tulsa chapter of Mended Little Hearts, said because someone supported her after her son was born with a heart defect, today she has decided to help others facing the same pain and fear.

Coe’s son, Ryan, now two years old, was born with truncus arteriosus, a condition in which the large arteries do not form properly. Since birth, Ryan has had two open heart surgeries, one at three weeks and one at 12 months. And he will need more as his heart grows and matures.

Click here to read more about Kelly and Ryan’s story published in the Sand Springs Leader this weekend.





Mended Hearts and Mended Little Hearts find a moment of hope

24 01 2011

Jacob Eason (lower left) with his family.

Fourteen years ago today, January 24, 1997, was the first day of Jacob’s Gift of Life. It was then when Jacob, Amanda Eason’s son, received his heart transplant. He was only six-weeks old and now he is a growing, thriving teenager.

As the Eason’s celebrate the blessings their family has been given, they also remember others who aren’t as fortunate.

In moments like this Mended Hearts and Mended Little Hearts members and staff are reminded why they continue to give their all each day in offering the gift of hope and encouragement to heart patients, families and caregivers.





Mended Hearts member featured on CBS Baltimore’s WJZ TV

30 12 2010

By Jennifer Browning

Mended Hearts member and WUSA9′s award-winning anchor, Bruce Johnson was featured on CBS Baltimore news this month about how he is thriving today after surviving a heart attack while covering a news story in 1992.

While on assignment for WUSA 9, in a tough DC neighborhood, Bruce suffered a sudden and massive heart attack. He was rushed to a nearby emergency room, stabilized, and then flown to the Washington Hospital Center where emergency angioplasty successfully unclogged an artery.

Bruce became convinced that he should use his near death experience to examine the toll heart attacks and serious cardiovascular events were taking on people, their family and friends, and what people might do to avoid such fates and become more heart healthy.

Bruce is also the author of Heart to Heart in which he reveals the stories of a diverse group of men and women, young and not so young who survived similar attacks.

Click  here or the video above to watch Bruce’s interview.

You can also to read about Bruce’s perspective regarding Mended Hearts role in helping heart patients continue in living meaningful lives by clicking here.





Giving Back: Bruce Johnson discusses the power of heart patients’ sharing their story

10 11 2010

By Jennifer Browning

When Bruce Johnson talks about being a Mended Hearts member it isn’t just personal. To him, Mended Hearts is family.

Bruce said that after joining Mended Hearts he began to feel an instant bond to his fellow members.

“It was kind of like meeting family,” he said. “We are speaking the same language, sharing the same experience. And when we ask someone how are you doing, we really mean it!”

These experiences members share between each other, Bruce said, is why Mended Hearts is so important for so many heart patients.

“I met some young people at convention and we were sharing our stories about our experiences. That part of Mended Hearts is so important, because it is a life-long process….a life journey,” he said. “No one gets to the point where we are totally mended, and you have nothing to worry about anymore.”

Bruce continued to explain how Mended Hearts is essential to heart survivors when it comes to life after heart surgery.

“How do I take the next step forward? That is where Mended Hearts comes in, and I don’t know any other organization that steps in and helps in this way,” Bruce said. “The members you get stay for life. “

Bruce explained that after surgery patients go through acute care, rehabilitation and that along with the physical part of recovery, there are the emotional and mental parts. This is where Mended Hearts comes in with the visiting program.

“A heart patient faces—how do I go on with the rest of my life?” he said. “It’s one thing to hear it from a doctor, but entirely different to hear from a patient who has been there. It’s the incredible power of one patient telling his story to another. That is where Mended Hearts can help.”

When heart patients leave the hospital, they are faced with a myriad of questions and worries. How do I talk to my wife? How do I share with my boss that I don’t know if I can do this job? How do I talk to my kids about my physical activity?

Talk to a heart patient first, Bruce said.

“Most of these cardiologists have never heard this from their patients,” he said. “They don’t have time to sit and talk to us about our fears and concerns. Through Mended Hearts we do that for them. That’s where, as an organization, we can be help to the cardiologists.”

The Washington reporter who uses social media tools to reach out to his audience said he appreciates how Mended Heart has

Bruce recently wrote Heart to Heart, the book, in which he reveals the stories of a diverse group of men and women, young and not so young who survived similar attacks. For Heart to Heart, he interviewed people of different gender and backgrounds who had also survived a heart attack or cardiovascular disease. The result is a fascinating collection of 12 patient stories, including his own and that of two other Mended Hearts members. Photo courtesy of Bruce Johnson.

begun to “fill the gap” by introducing members online.

 

“By being on Facebook, Mended Hearts is allowing us to support each other online,” he said. “It is an incredible asset. It isn’t just a resource, it is reaching out and connecting with real people you may not have met yet. At convention, you finally meet them, and now you have a face, but you already know their history.”

And Bruce isn’t afraid to reach out to others through the online community. Members will see Bruce commenting here and there on the Mended Hearts Facebook Page, and he doesn’t have a problem with getting personal.

In August, Bruce shared with members on Facebook that he was possibly going in for a procedure to receive an implantable cardioverter defibrillator (ICD) in the next few months.

“By posting my situation on the Mended Hearts Facebook page I knew there would be comments from people who had been there….had already had experiences with such devices,” he said. “The advice was right on point and incredibly helpful in eliminating my fears and apprehension. The Facebook page is like a 24 hour-seven day a week, long distance phone conversation or internet video hookup on Skype.”

And Bruce said he enjoys returning the favor using those same social network channels. He often scans the Mended Hearts Facebook Page looking for newcomers and people who have just discovered there is a social network support group for survivors.

“It’s always there when I feel like talking or listening to somebody who might need my help—-and I do feel this is part of the deal with Mended Hearts—-to reach back and share with others what you have gotten from the group,” Bruce said. “The message is simple, ‘you are not alone, you are loved and we will help you get through this.’”

But online or off, Bruce said that most of all, he appreciates Mended Hearts mission in helping heart patients continue on with life.

“Mended Hearts is about filling in the blanks,” Bruce said. “It has to do with getting along with the rest of our lives….the rest of our meaningful lives.”

* Bruce Johnson is a reporter and anchor for WUSA 9, the CBS affiliate in Washington, DC.. In 1992, while on assignment for WUSA 9, in a tough DC neighborhood, Bruce suffered a sudden and massive heart attack. He was rushed to a nearby emergency room, stabilized, and then flown to the Washington Hospital Center where emergency angioplasty successfully unclogged an artery. Bruce recently wrote Heart to Heart, the book, in which he reveals the stories of a diverse group of men and women, young and not so young who survived similar attacks. For Heart to Heart, he interviewed people of different gender and backgrounds who had also survived a heart attack or cardiovascular disease. The result is a fascinating collection of 12 patient stories, including his own and that of two other Mended Hearts members. This year, Bruce spoke to Mended Heart members at the Annual Convention.





Virginia cardiologist says Mended Little Hearts vital for parents of children with CHD

4 11 2010

In August CentraHealth’s Living in the Heart of Virginia series focused on Mended Little Hearts and how the organization is vital for families of children with congenital heart disease.

In the video above, Laura Morrison, Mended Little Hearts Coordinator, shares the story of how her daughter, Riley, had open heart surgery at two weeks old due to congenital heart disease, and how with the help of Dr. Mark Townsend, became involved with the organization.

Dr. Townsend, a cardiologist, talks about congenital heart disease, the history of the disease and how important Mended Little Hearts is to those young survivors and their families.

Mended Little Hearts, a support program for parents of children with heart defects and heart disease, is dedicated to inspiring hope in those who care for the littlest heart patients of all. Mended Little Hearts offers resources and a caring support network as families find answers and move forward to find healing and hope.








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